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Frequently Asked Questions

You have the right to opt out of your data being used for research and planning.

If you don’t want your confidential patient information being used for planning and research, you can opt-out using the National Data Opt-Out service. More information is available on the NHS Digital website.

Across London, each Integrated Care System is responsible for supporting the provision and organisation of health and care services at a local level. In London, we will only use non-identifiable – or depersonalised – data for service planning and research.

We use non-identifiable – or depersonalised – data to help plan and improve health and care services, and for research

Control of health and care data remains with individual local health and care providers

There are organisations running the health and care service at a national level, who collect data to support care and service planning and research across England.

These organisations include the Department of Health and Social care (DHSC), National Institute for Health Protection (formerly Public Health England), NHS England, and NHS Digital.

Some of these organisations, including NHS Digital collect confidential patient information so that it can be used to improve everyone’s health and care. The information they collect is used to:

  • Run the health service

  • Manage epidemics

  • Plan for the future

  • Research health conditions, diseases, and treatments

If you don’t want your confidential patient information being used nationally, you can opt-out using the National Data Opt-Out service. More information is available on the NHS Digital website.

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