Supporting health and care planning, population health management and research
As well as supporting people’s direct care through the London Care Record there are also wider opportunities to use data to improve the health and care of Londoners.
Local areas are already using data to help plan and design their services. This is helping to deliver more proactive treatment and support as well as manage the demand for services by focusing resources on the right areas.
While some areas are already working together through initiatives like the Discovery Collaborative Programme there are real opportunities to improve health and care if this is joined up across the whole of London. These include using pan-London data to:
Analyse health trends so we can predict future needs and better plan the services Londoners will need in the years ahead making more effective use of public resources.
Spot whether there any particular groups whose needs are not being met so improvements can be made to health and care services for everybody in the Capital.
Identify people who might be at greater risk of ill health and introduce new ways to support them and prevent them from becoming ill in the first place.
Support research into new drugs or treatments.
OneLondon is working with the Integrated Care Systems to develop secure ways to do this. We are also supporting the London Health Data Strategy (LHDS) programme that was set up in 2021 to develop and agree how this technical system will be used in line with public recommendations that were agreed by Londoners.
The programme is already supporting Pathfinder Projects that are joining up and using data in a range of key areas and helping to shape the policies and approach to a London-wide secure data system. Central to this is ensuring public involvement continues to be at the heart of this work.
For more information about the London Health Data Strategy Programme click here.
For more information about the Discovery Collaborative Programme click here
For more information about the HealtheIntent programme in North Central London click here
For more detail on how your information is being used click below:
Giving you better access to your health records and more control
OneLondon is joining up information safely and securely to deliver better health and care for Londoners. A key part of this work is giving you better access to your health and care records and more ways to interact with the people who provide that care.
The latest digital technology can support this by making sure you have the right information to access the services you need and giving you more control over your own care.
A plan for digital health and social care sets out how the NHS will deliver this, with the NHS App at the heart of these plans.
The NHS App is a simple and secure way to access a range of NHS services by smartphone or any smart device, or via NHS.uk on a desktop computer. It was used extensively during the pandemic to access Covid-19 passes and has now had over 29 million sign ups in England.
What is happening in London?
Across London a range of digital tools are already being used to give you better access to your health records, more consistent information and more choice and control over your health and care.
These digital applications can be accessed on smartphones, tablet or computer and depending on the specific system in place they can enable you to:
View and add information to your own health record
View details of upcoming and past appointments
Send a message to care teams or receive alerts about rescheduled appointments
Complete pre-treatment questionnaires online
View test results
Access health advice and support while you wait for appointments
OneLondon is supporting work across London to build on these existing initiatives so you have more access to your health records and greater opportunities to manage your health and care.
Building on the success of the NHS App, new features are being added to support you to manage your health and care and to stay well while you wait to be seen.
From Autumn 2022, some NHS Acute Trusts in London will link their existing patient portals to the NHS App. This means information and options for managing appointments are available in one place via the NHS App enabling you to:
View all your referrals and future secondary care appointments in one place
Access supporting information to help prepare for your appointments
View a single point of contact for each appointment
Book, change and cancel all your referrals and future secondary care appointments (in trusts where this functionality already exists via their portal provider)
These new NHS App features will give you more control over your hospital appointments and how and when you access information and support.
For the NHS, patient-led booking helps to reduce missed appointments.
If you have been referred from your GP to a hospital taking part, you will receive more information from that hospital about how to access and use the NHS App.
Care homes and the London Care Record
Late in 2022, as part of a pilot programme, the first 28 care homes in the Capital were connected to the London Care Record. This meant that for the first time they could see wider and key information about their residents from a range of health and care settings across London. This includes allergies, test results and care plans as well as GP data and hospital discharge summaries.
Evaluation of the pilot programme showed:
Following this pilot programme work will now begin to provide access to the London Care Record to all of London’s 1,500 care homes. This will take place in a phased approach over the next couple of years. Details of this will be available here due course.
Universal Care Plan (UCP)
The London Universal Care Plan is an NHS service that enables every Londoner to have their care and support wishes digitally shared with healthcare professionals across the capital.
A care plan is created following a conversation between a healthcare professional (such as a doctor or nurse) and the person in their care. Throughout the conversation, the healthcare professional will listen, understand and make notes on:
What is important to the person in their day-to-day life
Their preferences or wishes about their care
What support they need and who is best placed to provide this
Information about others who may be involved in that person’s care, such as relatives
The care plan is then created following this conversation using the Universal Care Plan. As soon as information is saved on the plan, it is visible to all health and care services who use it. This includes the London Ambulance Service, 111 and Out of Hours GP services who may see the person in an emergency.
OneLondon supported the development and introduction of this NHS service across London that became operational in July 2022.
Click here to visit the Universal Care Plan website.
Click here for more information about personalised care and support planning from the NHS website.
Click here for publications and resources for care planning in palliative and end of life care, provided by NHS England.